Parent relationships: children with disability, ASD and additional needs

Parent relationships: children with disability, ASD and additional needs

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Positive changes in your relationship when your child has additional needs

There are lots of great things about raising a child with additional needs. It can make your family stronger. You might also find that you share parenting responsibilities more and talk more with your partner.

You and your partner might see your child's additional needs differently, which is normal. This might mean you deal differently with your child's behaviour and relate to him differently too. And this can be a really good thing. You might get lots of new ideas from the different ways you approach things.

To have a strong parenting partnership, you need to talk with each other about your views and feelings. Sharing your feelings can help you feel good about your relationship. And when you make time for regular catch-ups on how you're feeling, it can also help you work together as a parenting team.

New challenges for your relationship when your child has additional needs

Caring for a child with additional needs can also bring new challenges and more pressures. Working together as a team to find solutions can help you to handle these challenges.

You might find that you have to pay for transport, equipment, medical bills or essential changes to your house, which can strain your finances. If you can, try to make decisions together about areas where you can save money.

You can contact the National Disability Insurance Scheme on 1800 800 110 to find out about getting financial support. You can also contact your state disability service for information about financial support.

Changes in employment and family roles
One or both of you might need or choose to cut your working hours to care for your child. This can change the way you divide up household tasks. You can talk together about ways to balance the workload with your partner, and look at flexible working hours or job options.

If you're staying at home to look after your child, try to get involved in local community groups and activities. This can help you feel connected to your community.

Child behaviour
Children's behaviour can be stressful for any relationship. If your child with additional needs behaves in difficult ways, it can help to decide together how you'll handle it so that you're consistent. Talking about this regularly is a good idea.

A psychologist or disability specialist can help you plan appropriate behaviour strategies for your child.

Quality time
Having a child with additional needs can mean that you and your partner have less quality time together. Spending pleasurable time together, doing things you enjoy and being intimate as a couple can bring you closer - and remind you that you're people, not just parents!

A family member or friend might be able to babysit, or your local disability service might be able to help you find respite care or babysitters who are trained in looking after children with additional needs.

Looking after yourselves and your relationship

It's easy to get caught up in looking after your child's needs, but looking after yourselves is important too.

Part of looking after yourself is finding time to do things you're interested in - as individuals and as a couple. It might be sport, music or social groups. A bit of time out helps you feel good - and when you feel good yourself, you've got more energy to put into your relationship.

Raising children is a big job for anyone, and raising a child with additional needs can mean an even bigger workload. You and your partner don't have to do the same things, but sharing the overall workload of child care, domestic chores and paid work is important. You could think about doing a weekly chart of chores and responsibilities to make sure things are fair. This can also help you make time each week for yourselves.

Talking openly about your feelings is important. Using 'I' statements can help you do this - for example, 'I feel as though… ', or 'I wonder if we could do this differently'.

And listening to each other without blame or judgment helps you give each other emotional support. When you're talking about difficult issues, you can show you're listening by saying things like 'I understand what you mean', or 'I didn't realise you felt that way'.

It's OK to laugh. A sense of humour can help you let off steam and see the funny side of things.

Working together on problems in your relationship

Conflicts and tensions happen in even the strongest relationships, and having a child with additional needs can create greater pressure on your relationship.

Here are some strategies that can help you with handling conflict and problem-solving:

  • Make time to talk about things you're worried about. Picking a time when your child won't be around is a good idea.
  • Sit down together and focus on what your partner is saying. Listen to your partner's thoughts and feelings without interrupting.
  • Try to say exactly what the problem is. For example, 'I feel like I'm not getting any time for myself. I haven't been able to get out for a walk for two weeks'.
  • If you don't agree with what your partner is saying, try to focus on the problem, not on your partner. For example, you could say, 'I'd like to try a different approach this time'.
  • Brainstorm lots of different solutions to the problem to see what might work best. You can also talk about what the solution might look like. You could ask, 'Are we both comfortable with this?' or 'Could we do this better?'
  • Ask how your partner is feeling after the discussion, and make sure that you both feel you've had a chance to say what's on your mind.

Finding support

Support will help you deal with stress and workload. For example, perhaps you could get a friend or a family member to look after your child while you and your partner spend some time together.

Support can come from:

  • family members and friends
  • other parents of children with additional needs
  • peer support groups like MyTime
  • disability associations or community agencies
  • professionals like psychologists or relationship counsellors
  • Commonwealth Carelink and Respite Centres - phone 1800 052 222.

When to get help to support your relationship

Learning about your child's diagnosis and working through the challenges of parenting a child with additional needs can trigger feelings of grief for both you and your partner.

It can take time to understand your child's diagnosis and process your feelings about your child's additional needs. You might go through a lot of different feelings - despair, guilt, denial, depression and eventually acceptance. These feelings don't always follow a clear pattern, and you might feel all of these emotions at various times.

Every couple will deal with their child's diagnosis differently. But your relationship might need attention if you experience the following:

  • loss of sex drive
  • withdrawal from each other
  • frequent arguments that you can't sort out.

If you're worried about your relationship, the first person you should talk to is your partner. You can deal with a lot of worries by talking openly - don't be scared to talk about how you feel. You might also want to get in touch with a relationships counsellor or a psychologist.